Fanconi Anemia Awareness

Raising Awarness about this terrible disease

Fanconi Anaemia is a rare genetic disorder that leads to severe health problems, this site is aiming to raise awareness of the disease.

Members

  • rosie jo gregory
  • tracie
  • Thomas Carroll
  • Jo
  • Marie-Pierre Bichet
  • Kazsta
  • Laura Palmatier
  • Hassassin
  • Judi Montgomery
  • Raven Silverwolf
  • Liz
  • Michael Ormond
  • Sarah Ritchie
  • Bob Dalgleish
  • Courtney
  • Jen Thomas

Events

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Fanconi Anemia Support Sites


Worldwide FA Support & Info
Fundraising for FA
Facebook Causes Page for FA
Facebook Page for Fanconi Hope Charity

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Latest Activity

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rosie jo gregory is now a member of Fanconi Anemia Awareness Dec 30, 2009
Welcome Them!
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Marie-Pierre Bichet is now a member of Fanconi Anemia Awareness Nov 29, 2009
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First UK & Ireland Joint Clinician/FA Family Meeting at Chatsworth, Derbyshire, UK

September 18, 2009 to September 19, 2009
Friday 18th SeptemberVenue: Chatsworth House, at the 'Barn' in the Farmyard. (Park in Main Car Park)11-12.30pm: Informal workshop sessions for FA families to meet various experts to discuss various issues such as screening for mouth cancer, genetics, pre-implantation genetic diagnosis/‘Saviour Sibling’, and nutrition.Activities for FA families attending will include free access to the Woodland Adventure Playground and Farmyard, organised children’s walk and small animal handling…See More
Event posted by Thomas Carroll Aug 19, 2009
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Thomas Carroll is now a member of Fanconi Anemia Awareness Aug 19, 2009
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Laura Palmatier is now a member of Fanconi Anemia Awareness Aug 4, 2009
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Courtney is now a member of Fanconi Anemia Awareness Jun 4, 2009
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John Hanna is now a member of Fanconi Anemia Awareness May 22, 2009
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Michael Ormond left a comment for Judi Montgomery
Thanks for Joining.
Apr 23, 2009
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Judi Montgomery is now a member of Fanconi Anemia Awareness Apr 10, 2009
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Michael Ormond updated their profile Apr 9, 2009
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Michael Ormond is now a member of Fanconi Anemia Awareness Apr 9, 2009
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tengtou is now a member of Fanconi Anemia Awareness Mar 20, 2009
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Bob Dalgleish, Jo, Cory A. Starchuk and 1 more joined Fanconi Anemia Awareness Mar 12, 2009
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Jo left a comment for Jo
This is something that interests me as I have anemia myself. Thanks for inviting me to join in and share information!
Mar 12, 2009
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Fund Raising Ideas

I am thinking of starting up a Just giving page for raising funds for FA research, has anyone else got any ideas of things we could do to raise money for research, or just to help raise awareness?All ideas would be most appreciated >:)See More
Blog post by Kazsta Mar 12, 2009
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Kazsta left a comment for tracie
You are very welcome sweetheart, anything to help you both, you know that xxx
Mar 12, 2009

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Kazsta

Fund Raising Ideas

I am thinking of starting up a Just giving page for raising funds for FA research, has anyone else got any ideas of things we could do to raise money for research, or just to help raise awareness?

All ideas would be most appreciated >:)

Posted by Kazsta on March 12, 2009 at 9:58am

Notes

Fanconi Anemia

Fanconi anemia is a genetic disease that typically leads to bone marrow failure, leukemia, and cancer.

FA is characterized by short stature, skeletal anomalies, increased incidence of solid tumors and leukemias, bone marrow failure (aplastic anemia), and cellular sensitivity to DNA damaging agents such as mitomycin C.

The disease is named after the Swiss pediatrician who originally… Continue

Created by Kazsta Mar 11, 2009 at 6:47pm. Last updated by Kazsta Mar 11, 2009.

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Welcome! To view all notes, click here. Continue

Created by Kazsta Mar 11, 2009 at 6:34pm. Last updated by Kazsta Mar 11, 2009.

 
 
 

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